Living with Advanced Colorectal Cancer: Exploring Informal Caregivers' Experiences with Bereavement and Patient Care at End of Life (An Interim Analysis)
Psychosocial / Spiritual & Wellness
The 'Living with Colorectal Cancer' study seeks to assess bereaved caregivers' experiences with caring for a loved one who has died of advanced colorectal cancer. Overall patient care during the last three months of life is rated by caregivers as very good or excellent most of the time. However, caregivers often feel insufficiently supported and unprepared by healthcare providers for their loved one's death. Information about bereavement services was not always offered.
Have a question about this session?
1) Describe bereaved caregiver experience with care at end of life for patients with advanced colorectal cancer.
2) Reflect on patient and family (caregiver) wishes at end of life and explore how often these wishes are honoured.
3) Summarize areas in which supports for bereaved caregivers are lacking and opportunities for improvement in the future.
Speaker Evaluation Form
Pose your question to this session's presenter(s) by clicking the button below.
Transitions in Amyotrophic Lateral Sclerosis: Patient and Caregiver Experiences
This study examined the perspectives of people with ALS and caregivers as they experience transitions in a progressive, terminal disease. People with ALS and caregivers were approached for recruitment at the Misericordia Hospital ALS clinic. We performed semi-structured interviews with 14 patients and 15 caregivers. The interviews were transcribed and analyzed using qualitative thematic analysis. We identified five main themes throughout interviews that were important to people with ALS and caregivers as they experience transitions.